85 | P a g e 65. TOYE 2013 : Negotiate the healthcare system I feel like a shuttlecock in the healthcare system as I am referred back and forth. I don’t want to keep going to the doctor because they don’t seem to do anything but I am trapped in the system. There may be some hope of a cure. I need to feel valued and treated with dignity in the system. I want a medical diagnosis but I also need to be treated like more than just a body. CHRONIC PAIN 66. TOYE 2013 : Moving forward alongside my pain (Realising that there is no cure) I am no longer looking for a diagnosis as this has stopped me from moving on. I am gaining a new sense of who I am rather than thinking about who I used to be. CHRONIC PAIN 67. TOYE 2013 : Reconstruct self in time (construction of time altered — unpredictable now and future) My sense of self now and in the future has been altered by pain. My pain is so unpredictable that I can only live in the moment. My life is dominated by caution and I can no longer be spontaneous. My plans and dreams are irreparably altered and my life focused inwards. CHRONIC PAIN 68. TOYE 2013 : Moving forward alongside my pain - Redefining normal I am redefining my sense of me. I am different but still me. I can still enjoy life even though I feel a sense of loss for my old self. CHRONIC PAIN
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