163 | P a g e 17. TONG 2012 [184]: Suspension in uncertainty - Hope versus disappointment My mood swings between the extremes of hope and despair. When I feel sick and in pain, I feel depressed, defeated, and sometimes want to give up. When pain is mild, I feel hopeful for remission or recovery. JUVENILE IDIOPATHIC ARTHRITIS 18. TONG 2012 [184]: Stigma and misunderstanding Discrimination My career opportunities may be limited. Potential employers may discriminate against me due to my physical disabilities. JUVENILE IDIOPATHIC ARTHRITIS 19. TONG 2012 [184]: Stigma and misunderstanding Others trivialise my arthritis. They do not see how serious it is. They do not understand that it can be unpredictable. They think it is a minor complaint of old people, or that I have caused it by cracking my fingers. JUVENILE IDIOPATHIC ARTHRITIS 20. TONG 2012 [184]: Stigma and misunderstanding - Invisible pain I am frustrated and hurt by the lack of empathy from others who cannot see my invisible pain. This is the worst thing about living with arthritis. Because my symptoms fluctuate, people accuse me of faking pain so that I can get out of things at school. I can’t explain what it is like and don’t want to talk about it. JUVENILE IDIOPATHIC ARTHRITIS
Previous Page Next Page