157 | P a g e 5. TONG 2012 [184]: Aversion to being different -Forced dependency on others I always have to depend on other people for help with ordinary things even opening the door. This affects my self-confidence. I am frightened to try and do it on my own. I don’t want to refuse help from others because I don’t want to hurt their feelings. Also, I might need their help later on. JUVENILE IDIOPATHIC ARTHRITIS 6. TONG 2012 [184]: Aversion to being different - Unrelenting and unpredictable pain I can’t lead my life like my peers because of my pain. It comes and goes and I cannot lead a normal life. It can be mild one day and the next minute it can be so severe that I can’t move. Pain controls and restricts my body. Pain makes me tired, powerless and incapable of doing things. JUVENILE IDIOPATHIC ARTHRITIS 7. TONG 2012 [184]: Managing treatment - Motivation for physical therapy Exercises are important to keep me mobile. I will exercise if it is fun. It can be difficult because I have other priorities, such as school. Sometimes I am just too tired, too busy or just bored of the repetition. JUVENILE IDIOPATHIC ARTHRITIS 8. TONG 2012 [184]: Managing treatment - Respect and involvement in health care I want to be part of the decisions that are made about my health care. My HCP should explain the tests and procedures. I can trust a good HCP who understands my illness and the effect that pain has on me. I want them to get to know me and to develop a good rapport. JUVENILE IDIOPATHIC ARTHRITIS
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