149 | P a g e 9. PASKINS 2014 [183]: Explanations and patient information People say it is normal and that ‘nothing can be done’. They say I must accept and persevere. I don’t bother telling my doctor as it is normal. Younger people with OA don’t feel this and look for reasons. No one is explaining it to me. They are not interested or don’t know what it is. I need more information so that I can manage it myself. I fear lifelong pain, and becoming disabled. OSTEOARTHRITIS 10. PASKINS 2014 [183]: Management of condition I go to the Dr if I am in pain or can’t manage. I decide about my own medication. Medication may mask symptoms. No one explains medication to me. I don’t know about side effects and I am worried about the effects on other conditions. I am a bit suspicious about medication. I want to know about other options. I want a cure. The Dr says treatment is ‘palliative’ modern medicine is not working for me. Advice about joint replacement is inconsistent. I don’t know enough to make choices about surgery and I am anxious about making the decision for myself. Care is reactive, and not proactive. I don’t know when to go back to my doctor for follow-up. OSTEOARTHRITIS 11. PASKINS 2014 [183]: OA and the doctor-patient relationship (a) I need the doctor to legitimise my symptoms. I am not being taken seriously. People don’t think that OA is a priority. My relationship with the Dr is important and I need it to be patient centred. OSTEOARTHRITIS 12. PASKINS 2014 [183]: OA and the doctor-patient relationship (b) I want to stay in charge of medication. I won’t see my Dr again because he recommended a TKR. There has been a breakdown in communication and shared decision-making and I am not achieving what I expected. This makes it difficult to control my pain. I have other health conditions and am distressed. OSTEOARTHRITIS
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