135 | P a g e 61. CAMPBELL 2011 [177]: Living with the symptoms of rheumatoid arthritis Pain dominates. My symptoms are variable and unpredictable. I don’t know from one day to the next whether I will be feeling better, worse or the same. I don’t know which part of my body it will affect. Pain is the only certainty. Pain makes me weary and lowers my personal reserve. I dread becoming dependent on others. There are no signs that verify my suffering to others. Pain and fatigue are ambiguous as they are invisible. On top of this is my swollen and disfigured body that adds to my suffering. RHEUMATOID ARTHRITIS 62. CAMPBELL 2011 [177]: Responses and coping strategies [Campbell’s study does not support a 'career' where RA is mastered. The studies included describe the lives of chronically disabled people trying to cope with severe and debilitating disease]. RHEUMATOID ARTHRITIS 63. CAMPBELL 2011 [177]: Consequences for identity and problems maintaining taken-for-granted activities My life has been disrupted. RA assaults my body and social life. I have lost my previous life and role. I can’t take things for granted. RA has challenged the normal reciprocity of life. Uncertainty means that I have to continuously monitor and manage my symptoms. Life is fraught with danger. Even everyday objects and events take on an alarming character and make me feel insecure. I am locked into my house. RHEUMATOID ARTHRITIS 64. CAMPBELL 2011 [177]: Lay perceptions of the causes of arthritis I need to understand why this is happening to feel a sense of order from fragmentation and loss of control. Is it the weather, my age an injury, diet, infection, bursitis, my shoes, air pollution. Is it my age is it my body breaking down? RHEUMATOID ARTHRITIS
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