127 | P a g e 45. HULEN 2016 : social connectedness and support Social support, connectedness and participation are important to me. People don’t know about RA. I want my expertise as a patient to be acknowledged. I need my healthcare professionals to actively listen to me. I want empathy, mutual respect and kindness. I want to make decisions about my own care. RHEUMATOID ARTHRITIS 46. HULEN 2016 : Interpersonal and healthcare system interactions I am in and out of healthcare and health care professional are an important part of my life now. I need this experience to be a positive one. RHEUMATOID ARTHRITIS 47. HULEN 2016 : Achieving normalcy and maintaining wellness Going to work and joining in socially is integral to who I am. It is important to my sense of well-being to find a way to live normally & appear normal to others. I want to ‘forget’ about having RA and enjoy life. I want to do the things that I want and stay in control. I want to be confident and motivated. I want to accept and find meaning in illness. I want to cope with its emotional impact, improve my mood and reduce stress or depression. RHEUMATOID ARTHRITIS 48. HOVING 2013 : Meaning of work Work is important to my self-identity. It keeps me in touch with people. It keeps my mind of my RA. It gives me independence. It is stimulating. It makes me feel good. I also need the money. Work is not so important to some people. RHEUMATOID ARTHRITIS
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